Charlotte’s just 30. Diagnosed with MND two years ago, she’s struggling to adjust to her new reality.
Like most people with MND, she needs major changes to her home. Things like a ramp, and a wet room.
There is funding available from local councils to adapt homes – called the Disabled Facilities Grant (DFG).
But the DFG process takes far too long. It takes an average of around one year to get vital adaptations funded.
With a third of people dying within a year of diagnosis, this is unacceptable.
That's why we're calling on every council to commit to completing all approved large adaptations within four-and-a-half months.